SEF studies and research funding
1
EndoConnect database
(Provisional designation)
Project management: L. Burla, A. Constantin, P. Oppelt
Further information in the minutes of the Artificial Intelligence Weissensee 2024 working group
2
AWARD study
(Care situation for adhesions in the DACH region)
The study concept was developed by a working group comprising endometriosis specialists from Germany (Schäfer, Krämer, Alkatout, Meinhold, Mustea, Klapdohr), Austria (Oppelt) and Switzerland (Heinzelmann-Schwarz). The study is supported by the company Planttec, which developed 4DRyField and would like to promote more independent scientific findings.
Project management: I. Meinhold-Heerlein
Start: 2024
3
QS Endo
Collection of data on the care situation, diagnosis and treatment of endometriosis; development of quality indicators for treatment; improvement of treatment quality
Project management: I. Meinhold-Heerlein
QS Endo Real
published Zeppernick F. et al. QS ENDO Real – A Study by the German Scientific Endometriosis Foundation (SEF) on the Reality of Care for Patients with Endometriosis in Germany, Austria and Switzerland. Obstetrics Gynecology 2020 Volume 80, Issue 2, Page(s) 179-189
Start: 2017
QS Endo Pilot
published Meinhold-Heerlein I. et al. QS ENDO Pilot – A Study by the Scientific Endometriosis Foundation (SEF) on the Quality of Care Provided to Patients with Endometriosis in Certified Endometriosis Centers in the DACH Region. Geburtshilfe Frauenheilkd.83(2023)835-842
Start: 2020
QS Endo Study
Data sheet created; fundraising underway
Start: 2023
4
Complaints and quality of life in women with suspected endometriosis. A prospective, multicenter observational study
(How do the individual symptoms correlate with the surgically assessed #Enzian?)
Project management:
Assoz.Prof.in Priv.-Doz. Dr. Beata Seeber, Medical University of Innsbruck;
E-mail: beata.seeber@i-med.ac.at
Univ. Prof. Dr. René Wenzl, MSc. Medical University of Vienna;
E-mail: rene.wenzl@meduniwien.ac.at
Start: 2022
5
What effect (delta) does surgical treatment of deep infiltrating endometriosis have on the three characteristics of the C-compartment (C1-3) after 6 or 12 months?
Project management:
Univ. Prof. Dr. René Wenzl, MSc. Medical University of Vienna;
E-mail: rene.wenzl@meduniwien.ac.at
Start: 2022
6
Survey of the practice of surgical treatment of colorectal TIE and associated complications
A project of the SEF’s TIE surgery complications working group
Project management: G. Hudelist, Vienna – S. Imboden, Bern and M. Burkhardt, Ostfildern
Start: 2020
published: Hudelist G. et al. Rates of severe complications in patients undergoing colorectal surgery for deep endometriosis-a retrospective multicenter observational study. Acta obstetricia et gynecologica Scandinavica, 101(2022)1057-1064
7
Patients with endometriosis – care under COVID-19 conditions
Data from 50 EMZs in Germany, Austria, Switzerland and the Czech Republic and 108 IVF centers from 2019 and 2020. Over 20,000 patients were recorded in each case.
Project management: K. Bühler
Start: 2019
published in 2021 (Der Frauenarzt 7(2021) 492-495
8
CAMERA: Cell Adhesion Molecule Endometriosis Ratio
Project management:
L. Key
E-mail: lorenz.kuessel@meduniwien.aqc.at and
R. Wenzl, Vienna
E-mail: rene.wenzl@meduniwien.ac.at
Start: 2018
Data analysis completed – publication in preparation
9
Ultrasound criteria for the diagnosis of adenomyosis
Prospective multicenter study of the AG Adenomyosis
Project management: H. Krentel
Start: 2018
published 2023 Krentel H. et al. Ultrasound Obstet Gynecol 2023; 62: 739-746 (DOI: 10.1002/uog.26197)